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Infants, children, youth and young adults with a serious illness in British Columbia: a population-based analysis using linked administrative data

Elisa Castro Noriega, Harold Siden and M. Ruth Lavergne
December 05, 2023 11 (6) E1118-E1124; DOI: https://doi.org/10.9778/cmajo.20220181
Elisa Castro Noriega
Canuck Place Children’s Hospice (Castro Noriega, Siden); British Columbia Children’s Hospital Research Institute (Siden); Department of Pediatrics, Faculty of Medicine, University of British Columbia, Vancouver, BC; Department of Family Medicine, Faculty of Medicine (Lavergne), Dalhousie University, Halifax, NS
MPH
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Harold Siden
Canuck Place Children’s Hospice (Castro Noriega, Siden); British Columbia Children’s Hospital Research Institute (Siden); Department of Pediatrics, Faculty of Medicine, University of British Columbia, Vancouver, BC; Department of Family Medicine, Faculty of Medicine (Lavergne), Dalhousie University, Halifax, NS
MD MHSc
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M. Ruth Lavergne
Canuck Place Children’s Hospice (Castro Noriega, Siden); British Columbia Children’s Hospital Research Institute (Siden); Department of Pediatrics, Faculty of Medicine, University of British Columbia, Vancouver, BC; Department of Family Medicine, Faculty of Medicine (Lavergne), Dalhousie University, Halifax, NS
PhD
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Article Figures & Tables

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    Table 1:

    Demographic characteristics of infants, children, youth and young adults who had a serious illnesses code recorded during a hospital admission in British Columbia by fiscal year

    Characteristic*No. (%) of patients
    2012/13
    n = 2455
    2013/14
    n = 2508
    2014/15
    n = 2509
    2015/16
    n = 2448
    2016/17
    n = 2457
    Age group, yr
     < 11252 (51.0)1334 (53.2)1375 (54.8)1276 (52.1)1242 (50.5)
     1–4340 (13.8)315 (12.6)278 (11.1)285 (11.6)294 (12.0)
     5–9147 (6.0)155 (6.2)171 (6.8)164 (6.7)176 (7.2)
     10–14150 (6.1)142 (5.7)135 (5.4)138 (5.6)131 (5.3)
     15–19217 (8.8)210 (8.4)200 (8.0)221 (9.0)245 (10.0)
     20–25349 (14.2)352 (14.0)350 (13.9)364 (14.9)369 (15.0)
    Sex
     Male1378 (56.1)1423 (56.7)1368 (54.5)1364 (55.7)1368 (55.7)
     Female1077 (43.9)1085 (43.3)1141 (45.5)1084 (44.3)1089 (44.3)
    Socioeconomic status†
     1 (lowest income group)554 (22.6)536 (21.4)527 (21.0)565 (23.1)512 (20.8)
     2517 (21.1)514 (20.5)562 (22.4)518 (21.2)479 (19.5)
     3474 (19.3)478 (19.1)487 (19.4)459 (18.8)492 (20.0)
     4492 (20.0)526 (21.0)496 (19.8)524 (21.4)499 (20.3)
     5 (highest income group)389 (15.8)430 (17.1)404 (16.1)341 (13.9)432 (17.6)
     Missing or unknown29 (1.2)24 (1.0)33 (1.3)41 (1.7)43 (1.8)
    Taxonomic unit
     Perinatal1003 (40.9)1052 (41.9)1121 (44.7)1032 (42.2)980 (39.9)
     Congenital444 (18.1)458 (18.3)436 (17.4)434 (17.7)456 (18.6)
     Oncology390 (15.9)401 (16.0)380 (15.1)393 (16.1)413 (16.8)
     Neurology134 (5.5)128 (5.1)112 (4.5)122 (5.0)125 (5.1)
     Metabolic32 (1.3)26 (1.0)31 (1.2)29 (1.2)30 (1.2)
     Otherwise specified452 (18.4)443 (17.7)429 (17.1)438 (17.9)453 (18.4)
    • ↵* We did not find missing data for age, sex or taxonomic unit. Less than 1.8% of patients had missing data for socioeconomic status in any year.

    • ↵† Based on neighbourhood income quintile.

    • View popup
    Table 2:

    Infants, children, youth and young adults who had a serious illnesses code recorded during a hospital admission in British Columbia by clinical stage and fiscal year

    Clinical stageNo. (%) of patients
    2012/13
    n = 2455
    2013/14
    n = 2508
    2014/15
    n = 2509
    2015/16
    n = 2448
    2016/17
    n = 2457
    Stable809 (33.0)866 (34.5)880 (35.1)761 (31.1)741 (30.2)
    Unstable (emergency department)956 (38.9)960 (38.3)948 (37.8)994 (40.6)1037 (42.2)
    Unstable (hospital admission)192 (7.8)197 (7.9)176 (7.0)148 (6.0)138 (5.6)
    Deteriorating417 (17.0)380 (15.2)425 (16.9)449 (18.3)432 (17.6)
    Died81 (3.3)105 (4.2)80 (3.2)96 (3.9)109 (4.4)
    • View popup
    Table 3:

    Rate of hospital admissions of infants, children, youth and young adults who had a serious illnesses code recorded during a hospital admission in British Columbia by age and fiscal year

    GroupRate of hospital admissions per 10 000 population
    2012/132013/142014/152015/162016/17
    Age group, yr
     < 1286.7302.0312.6284.7276.4
     1–418.917.615.415.715.9
     5–96.66.97.57.07.4
     10–146.46.15.85.95.6
     15–197.77.67.38.19.0
     20–259.49.39.19.49.6
    Total (0–25 yr)18.418.718.618.118.1
    • View popup
    Table 4:

    Odds ratios (ORs) for risk of instability among infants, children, youth and young adults who had a serious illnesses code recorded during a hospital admission in British Columbia*

    VariableUnivariable modelMultivariable model
    OR (95% CI)p valueAdjusted OR (95% CI)p value
    Sex0.810.61
     FemaleRef.Ref.
     Male1.01 (0.94–1.08)1.02 (0.95–1.10)
    Age group, yr< 0.01< 0.01
     < 15.03 (4.57–5.54)6.59 (5.97–7.29)
     1–4Ref.Ref.
     5–92.00 (1.71–2.34)0.96 (0.82–1.13)
     10–142.11 (1.80–2.46)0.99 (0.84–1.16)
     15–192.58 (2.26–2.94)1.18 (1.03–1.35)
     20–252.85 (2.54–3.19)1.25 (1.10–1.42)
    Socioeconomic status†0.050.20
     Missing1.03 (0.79–1.35)1.04 (0.78–1.38)
     1 (lowest income group)1.14 (1.02–1.27)1.10 (0.98–1.23)
     21.00 (0.90–1.12)1.00 (0.89–1.12)
     30.96 (0.86–1.08)0.98 (0.87–1.10)
     41.06 (0.95–1.19)1.09 (0.97–1.22)
     5 (highest income group)Ref.Ref.
    Taxonomic unit< 0.01< 0.01
     OncologyRef.Ref.
     Perinatal0.61 (0.55–0.67)0.26 (0.23–0.30)
     Congenital1.16 (1.04–1.30)0.78 (0.68–0.88)
     Neurology1.45 (1.23–1.71)1.43 (1.21–1.70)
     Metabolic1.20 (0.87–1.65)0.98 (0.70–1.36)
     Otherwise specified‡1.72 (1.55–1.91)1.55 (1.39–1.73)
    • ↵* Models used 39 348 observations (4198 events) from 11 280 patients.

    • ↵† Based on neighbourhood income quintiles.

    • ↵‡ Otherwise specified includes hematology, genitourinary, respiratory, gastrointestinal, circulatory, other and multiple diagnoses.

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Infants, children, youth and young adults with a serious illness in British Columbia: a population-based analysis using linked administrative data
Elisa Castro Noriega, Harold Siden, M. Ruth Lavergne
Nov 2023, 11 (6) E1118-E1124; DOI: 10.9778/cmajo.20220181

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Infants, children, youth and young adults with a serious illness in British Columbia: a population-based analysis using linked administrative data
Elisa Castro Noriega, Harold Siden, M. Ruth Lavergne
Nov 2023, 11 (6) E1118-E1124; DOI: 10.9778/cmajo.20220181
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